Tag Archives: parenting

Case of the Missing Cookies

Case of the missing cookies

The other night, I had just gotten PA out of the shower & I was in her room looking for clothes. While I was going through her drawers I found a surprise in the bottom corner of her drawer

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A mystery was solved from a few nights previous.

The missing cookies

It all started few days before I found the “surprise” was on Sunday. It was PA’s sister’s 18th birthday (yes, I feel old).  On Monday one of her friends brought a bag full of cookies to school for her. She shared a bunch with her friends and brought the rest home. After dinner she offered two cookies to PA, and she promptly ate them. As the evening went on the bag of cookies was left on the counter unattended. We did not think twice about it.

The next morning we got up and when my older daughter went to put the cookies in her lunch they were gone. We could not figure out where the cookies went. When we went to bed there were 5 cookies in the bag. I know we did not eat them, and as far as we knew PA had only had the two cookies. My older daughter went to bed before us, so I know she didn’t eat them.

Now back to the drawer. That is where I found pieces of many cookies sitting in the bottom corner of her drawer.

This is not the first time we have had this problem with her stashing food. She has done it with soy sausage, cheese, pretzels you name it. However it has been about a year since she had done it.

I did go back in her room the next day after she went to school and found what I feared.

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Found an old ham & cheese sandwich from Subway.


Also in her closet:
IMG-20130302-00017I found pretzels in the big teapot that holds her tea set.Now I am thinking I need to go through her room again. We have been lucky to this point, she has not gone back and eaten anything that has made her sick. I need to figure out why she does this.I have read a few places on line and most say it is because kids were deprived of food. This is totally not the case. I am having a hard time finding anything more on this subject. She is not overly OCD either. I am really kind of baffled on this one.If anyone has any ideas or experience or insight feel free to share.  Thank you.
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People think they know autism when they see it? NOT

Something that has been bothering me for a while is someone who visited my family a while back & spent maybe an hour or two. This person told another friend my daughter was not on spectrum. Now this person has never up till that day spent time with my daughter. As far as I know she knows nothing of kids on the high end of the spectrum. Every individual with Autism is unique.  No two diagnoses are the same.  Just like each person has a different personality, each person has a different level of Autism.  Yet she is an expert & is now telling others that I am making up my daughters autism?

 

Why would someone make that up?

If she were not on spectrum why do I have a 2 binders 3 inches thick full of reports, assessments and doctors reports about her disability?

How could I manage to get services from a school district & have her go to a special pre-school for mild to moderate autistic kids for two years?

Then have her in a similar classroom for kindergarten?

School districts are stingy about who they give services too and unless your child has a definite disability you do not get anything.

 

I guess this person’s argument was my PA did not look or act like she was autistic.

 

So I ask you:

  1. What does an autistic kid” look” or “act” like?
  2. Can they never behave and seem “normal”?
    1. From what I remember on this day PA was stimming really bad. This person had made mention she was “just hyper.” Really? I have never seen an NT child stim because they were hyper.

 

My daughter can usually behave for company fairly well.  Really the only clues would be her stimming. Even with company she can manage some eye contact for short period of time. People who do not understand autism may think she is “normal” maybe just a little high-strung. However unless you see her on a regular basis spend a little time with her, maybe encounter her in an unfamiliar setting you will not see what we see & deal with.

 

What I would like to say to someone; who either does not believe me or doubts how it really affects us; is unless you have walked in my shoes, spent the time to get to know my girls & family; unless you have spent more than an hour or two and seen PA at her best, worst & everything in between, you have no right judging me or making a call on my child’s diagnosis.

 

In case you are curious her official diagnosis is PDD-NOS (pervasive developmental disorder not other wise specified) with SPD (sensory processing disorder), severe food aversions, epilepsy, hypertonia & chronic constipation & GI distress. PDD-NOS is on spectrum. This diagnosis may be on the high end of spectrum but it is still ON SPECTRUM.

 

Judge not, lest ye be judged.

Cheese and Lettuce Delight

Tonight PA decided she was going to cook. I heard her in the kitchen making all sorts of racket. I called after her and asked her what she was doing & she said “I making Cheese  Lettuce Delight momma.”

So I went to see what she was up to because there was a lot of noise in the kitchen and this usually is not a good thing. Sure enough she had the lettuce and cheese out. She asked me for a plate, so I got one for her. Then I went to grab my camera, because this is always something to document.

The following is in her words (as far as the explanation under the photos).

“First put lettuce on plate”

“Then cheese on it”

“Have to put in bowl cause it messy”

“Stir it up”

“Now eat it mom. I make for you”

Of course she made it for me, after all it is green and she would never eat anything on purpose that was green. Not only because of the color but because of the texture. I have to give her credit. She did do a really good job. She also did a good job telling me what she was doing. I guess sort of a lesson in being able to explain something in steps. Something that is rather difficult for a child with ASD (autism spectrum disorder ).

I’m bored & was accused of hovering

I’m bored & my husband has accused me of hovering. I asked him what I should do and he told me to write a blog post about being bored. So here goes and for the record he cannot come back and say anything because he told me to do this.

I’ll admit it I don’t entertain myself well & after I have been sick for a few days I need to get out to do something. I already picked up the living room & have dinner in the oven and to set the record straight I did try to entertain myself. I went on to Facebook no one really was on line so I could not chat with anyone. Unless you play games (which I do not) then Facebook becomes boring after about 5 minutes. I went onto Pinterest too & well nothing was peaking my interest there either. I trolled Twitter for a bit & you guessed it. It did not really pull me in either. I also thought about some of the unfinished projects I have, but soon realized I needed something for just about everything so I was back to not being able to go anywhere. Besides sometimes I just want to be entertained. Is that so bad?

See everyone in my household all have something they go & do during the day. My husband has school so he gets out most days to study at our local Starbucks and has school every Wednesday night. My 17 year old has High school and also has church activities every Tuesday night. Even my 4 year old has school most days. Even if it is just 4 hours a day even she gets out of the house.

The only time I get to get out is when I can con someone to take me.

Unfortunately I cannot just get out of the house on my own. See I am not able to drive any longer because of health and vision problems.  I have to depend on others for rides. Usually when I am bored & want to get out to do something, I just hover around my husband & he usually gives in. Right now I can’t think of anything to do that doesn’t cost money & somewhere I don’t have to walk too much. Being it is getting ready to storm outside he doesn’t want me out in it. I feel like a little kid stuck indoors watching the world go by.

Of course there is always housework **sigh**

Bugs revisited…..

So I have written in the past about PA’s fear of flies & ants (well bugs in general). This is not a “Yikes a spider” type of thing but an out right screaming tantrum refusing to step into the room with the bug wakes up with nightmares type of fear.

I made the mistake last summer to take PA horse back ridding in hopes it would help her core strength & balance issues. Well it backfired on me. What is the one thing you cannot get away from around horses? You guessed it Fly’s & Ants. After that disaster of an outing it took her 2 weeks before she would sleep the 4 continuous hours a night before waking.

Now back to the present. We are very carful about the bug issue around here & it’s not easy because for some reason we moved to a place where the flies are HUGE and abundant. My husband is always on the look out for flies & actually carries a flyswatter around the house with him. One of these days I will make him a holster for the thing **laughing**.

So over the past few months we have not had a bug incident & no real mention of them (thank heavens). That is until very early this morning (4am to be exact). I woke up to her screaming at the top of her lungs that there were ants in her bed & just sobbing about how they were crawling all over her. It took my husband & I a long time to get her to calm down & had to move to the front room before she would calm down. Even then she was still acting like she had ants crawling on her. Needless to say she did not get back to sleep & thank heaven to my Shann (her 16 year old sister) for taking over for us after she got home from seminary (early morning bible study). My husband & I were able to get another hour or so before we actually had to get up & get going.

The rest of the morning was traumatic & she was whiny & defiant. I felt bad for sending her to school that way, but we needed a break. Now she is home & obviously tired. I still have no idea what brought this on. The only thing I can think of is that she has been picking at a hangnail she got & she is interpreting the sensation of that like she has ants crawling on her. We often have to cover up sores on her or she will pick obsessively at them until they are covered & out of sight. However she will take Band-Aids off & will not keep them on. Then she keeps picking at her sores. It really is a no win situation.

So I am left wondering how long she will not be able to sleep & how long she will keep having nightmares. I actually had thought she might be hallucinating this morning, cause she was wide awake & still was picking at her skin like she had ants crawling all over her. I am just not sure how to approach this. Even if we try to talk to her about it just makes her think about it more.

So frustrating sometimes when you just don’t know how to solve a problem like this with a small child let alone a special needs child.

Poor kid…Fell asleep with her nebulizer going..

I have no idea how she can sleep after getting all those steroids & albuterol. I feel so bad for her. This is her life…She’s a trooper…

Importance of Journaling in my life

I have always been passionate about journaling. It was a big part of my upbringing and important to my parents. I remember as a kid being told every Sunday we had to sit down and write in our journals. My sisters and I were all given our first journals when we were 5 years old. Every Sunday we would all sit down and write something.  I remember not being thrilled about this and actually, I dreaded it for a long time. I never knew what to write and I would just sit there. Usually I wrote simple explanations about my day. It was always just once a week, but it was something my parents insisted on us doing.

After a few years I did not dread it as much. Both of my parents kept journals. I remember a row of journals in the bookshelf that were my parents. I also remember the journal was sacred. No one read anyone’s journals with out permission & was never an issue.

I did not realize it but my parents were instilling a very important skill in me. Not only did it chronicle my life. Also taught me about what and how I was thinking. Also taught me how to deal with my feelings and work through problems. I have had countless journals throughout my life. My very first one was a red hardbound journal with my name in gold lettering.

As I got older, I got better about journaling. For years I kept a journal and was very good about writing in it almost daily. I stopped journaling off and on over the years. Now looking back life was less stressful when I was journaling, because I talked things out in my journal. I used it like therapy so to speak.

When I have stopped journaling, it has always been because I am going through a rough time. Or it is because I am not ready to process something that had happened. I kept a journal through my original cancer diagnosis & subsequent surgeries. However after I had my youngest daughter and then told me my cancer was incurable I stopped writing. I think I stopped writing, because I had not totally accepted the fact I was not going to get better.

Almost a year ago I started writing this blog. This has been a journal of sorts for me. I do need to get back to actually writing a journal, because I tend to write more personal things on paper. I think I will make this a goal and work on it.