Much has happened since I blogged last. We did finally land and got moved into a new apartment. Of course we had to spend 3 weeks down in southern CA waiting for the apartment to be ready.
We were able to make a trip to Disneyland (a very generous graduation gift to my older daughter, from a very dear friend). Was an awesome trip. PA was in heaven and LOVED all the rides. Her favorite was Star Tours & Space Mountain surprisingly enough. We were able to spend some much-needed family time together. My husband did make me sit in a wheel chair to get around though. I was not feeling well.
Turned out a few days after that I went back into the hospital. I could not eat and was in horrible pain. I ended up having a tumor taken out of my bile duct & had several stints put in. Apparently my bile duct was completely blocked with scar tissue and the tumor. Then the next week I recovered before we finally were supposes to come home.
The morning we were supposed to leave my husband went down the stairs (was 2am and dark) and slipped down the bottom 3 or 4 steps. Instead of leaving we got to take another trip to the ER. Only this time was to see if he broke his elbow. Turned out was not broken but badly sprained. He also hurt his back again and is going in this next week for an MRI to see what damage he might have done to his back. He had 2 back surgeries a little over 10 years ago.
We were able to make the trip back the next day. Of course it was raining, but with the help of my in laws and my older daughters boyfriend & his brother we were able to get it done.
It has been a rough month. All of us have had to make adjustments living in a smaller place. Poor PA has had it the worst. She is still not sleeping and is really making life hard some days for me. I am hopeful she will settle down soon.
Now a month later, we are a little more settled. This next week I will get PA registered at her new school. I also have more testing in nuclear medicine coming up (an octriotide scan). Then I also have appointments with specialists. I also have another surgery the last week of Aug. It will be a busy month. I hope to update a little bit more often.
Tonight PA decided she was going to cook. I heard her in the kitchen making all sorts of racket. I called after her and asked her what she was doing & she said “I making Cheese Lettuce Delight momma.”
So I went to see what she was up to because there was a lot of noise in the kitchen and this usually is not a good thing. Sure enough she had the lettuce and cheese out. She asked me for a plate, so I got one for her. Then I went to grab my camera, because this is always something to document.
The following is in her words (as far as the explanation under the photos).
“First put lettuce on plate”
“Then cheese on it”
“Have to put in bowl cause it messy”
“Stir it up”
“Now eat it mom. I make for you”
Of course she made it for me, after all it is green and she would never eat anything on purpose that was green. Not only because of the color but because of the texture. I have to give her credit. She did do a really good job. She also did a good job telling me what she was doing. I guess sort of a lesson in being able to explain something in steps. Something that is rather difficult for a child with ASD (autism spectrum disorder ).
Posted in My Pictures, My silly Kid, Special needs/PDD-NOS/SPD:, Things I Love
Tagged autism, autism spectrum disorder, food, Fun Times, good job, Good times, momma, parenting, Silly, silly kid
I have always been passionate about journaling. It was a big part of my upbringing and important to my parents. I remember as a kid being told every Sunday we had to sit down and write in our journals. My sisters and I were all given our first journals when we were 5 years old. Every Sunday we would all sit down and write something. I remember not being thrilled about this and actually, I dreaded it for a long time. I never knew what to write and I would just sit there. Usually I wrote simple explanations about my day. It was always just once a week, but it was something my parents insisted on us doing.
After a few years I did not dread it as much. Both of my parents kept journals. I remember a row of journals in the bookshelf that were my parents. I also remember the journal was sacred. No one read anyone’s journals with out permission & was never an issue.
I did not realize it but my parents were instilling a very important skill in me. Not only did it chronicle my life. Also taught me about what and how I was thinking. Also taught me how to deal with my feelings and work through problems. I have had countless journals throughout my life. My very first one was a red hardbound journal with my name in gold lettering.
As I got older, I got better about journaling. For years I kept a journal and was very good about writing in it almost daily. I stopped journaling off and on over the years. Now looking back life was less stressful when I was journaling, because I talked things out in my journal. I used it like therapy so to speak.
When I have stopped journaling, it has always been because I am going through a rough time. Or it is because I am not ready to process something that had happened. I kept a journal through my original cancer diagnosis & subsequent surgeries. However after I had my youngest daughter and then told me my cancer was incurable I stopped writing. I think I stopped writing, because I had not totally accepted the fact I was not going to get better.
Almost a year ago I started writing this blog. This has been a journal of sorts for me. I do need to get back to actually writing a journal, because I tend to write more personal things on paper. I think I will make this a goal and work on it.
Posted in My Ramblings:, My reality, Things I Love
Tagged Family, Fun Times, Good times, Hard times, Just me, more rambling, parenting, realizations, Thinking back
This was taken in Monterey at our favorite park when Shann was 5 I think…..I took the picture…Shann was running in the park…