I was invited to A Patient Education Conference


I signed up this past weekend to go to Stanford University. They are putting on a Neuroendocrine Tumor Patient Education Conference the weekend of September 9. It is the second year they have done this. Best of all it is free. They are having a fundraising event on Fri. night it is moonlight in Palo Alto.

This is going to be information packed weekend with lectures. It means I get a chance to talk to more people about this & raise awareness to this otherwise unheard of cancer. Even though there are more & more people diagnosed with this it is still relatively unheard of.

Because it is at Stanford University, it means I have to get a hotel room. I am fortunate to be sharing the cost of this with a friend. She is also a Carcinoid Cancer patient. This will also be the first time away from my family for more than a few hours (with the exception of when I was in hospital). This will be a weekend away 
Now I need to try to put aside some money for this. It is not going to cost a lot of money. I can eat cheap & I do not have to sleep at the Hyatt. I do however want to stay somewhere a step up from the Motel 6.

Here is the lineup of lectures:
10:00-10-10 Welcome & Introduction
10:10-10:30 Neuroendocrine Tumor 101
10:30-11:00 Surgery for NETs: Disease-Specific Issues & Opportunities
11:00-11:30 The Many Faces of Radiation: PRRT, Radioembolization, Stereotactic Radiosurgery
11:30-12:00 Nutrition: What to eat
12:00-1:00 Lunch break (of course LOL)
1:00-1:45 Tumor Board Discussions
1:45-2:15 Carcinoid Syndrome: Complications & Management
2:15-3:15 Panel: Hot Topics in Care
3:15-3:45 Break (posters on display)
3:45-4:30 Panel: Psychosocial Aspects of Advanced Disease
4:30-5:15 Looking to the Future the Power of Research
Clinical Trials 101
Current Clinical Trials
5:15-6:15 Appetizers & Poster Session
6:15 Adjourn

I am really hoping to get some information to help me better manage this cancer & make my life better. I hope I can pull this off & go. I almost feel like if I cannot get help from my doctor’s maybe I can get some information to go back & present to them & make my case for seeing a specialist.
Wish me luck in getting it all together.

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