So I know everyone has a horrible week every occasionally the kind that makes you appreciate the good times even more.
I know anyone who follows me on twitter knows all about it. I needed to write it down because I want to look back and say, “Wow, we made it through that we can do anything”. It is funny to think but we have had many of these kinds of week. So why document this one you ask? Well because I CAN…
So this all started last week when I went to see a specialist I had seen October 2010. I decided to go back to see him after my oncologist told me he did not think my symptoms were carcinoid related. If you did not know, I have had Carcinoid Cancer/syndrome since 2006 and it is an incurable neuroendocrine cancer. I went to the only specialist who I could go back to see without a referral & could get in fast. He was shocked at the lack of care I had received from the oncologist. Had said I was much worse off than he expected me to be. Therefore, he is taking over my care. I have scans scheduled starting on Sunday. He was however reluctant to let me leave his office. He wanted me to go to the ER.
Well the ER at that point was not an option being we had an appointment with an intake person at Alta Regional Center for PA. We are having her reevaluated for more autism services. I made it to the evaluation ok. I was in some serious pain & just not feeling well but I made it through.
Later I went in to the doctor’s office for a blood pressure recheck. At my appointment, my BP was up and my heart rate was 149 so the nurse went to chat with the doc and he ordered an EKG. Well you can guess what happened after that… Yep I was admitted into the hospital. Ended up I had some kind of infection they could not find (antibiotics given), my potassium was very low, my heart rate was extremely high (147) and I was mildly malnourished. Ok, that was somewhat unexpected, but then again it was not. On top of the antibiotics, they gave me a heart medicine to bring down the heart rate. Now I do not have good luck with heart meds as I have been on them in the past (tried several types).
As a result, it lowed my blood pressure too much and the rest of the week, I have been couched as I have termed it. If I was not in bed, my butt was planted on the couch. Has not been much fun.
So on to the next item. Tuesday my hubby & I were on our way to pick up a prescription & on the way, back the car acted up. We made it back to the house. Turned out there was a high-pressure metal tube in the cooling system was corroded and gave way. This was going to set us back $750.00. Being we live from check to check, I did not have this kind of cash. Therefore, I decided to sell my Rodeo (my car). We usually sell everything we can to pay for unexpected expenses. Therefore, we were able to pay for that & started to relax a bit. Well until my older daughter said, her tooth had been bothering her.
My husband took her to the dentist yesterday & with our luck, she needs a root canal. We found out our dental insurance is good for cleanings & that is it. They said it was going to be $3,800! I about died… We cannot do 3800 dollars & I do not have another car to sell. So here, I am with a daughter in pain needing major dental work that I cannot pay for and they will not take payments either. On top of that, because we have gone our entire marriage with NO credit they will not give us any. I even called some dental schools and they would only give us a 10% discount.
So here I am wondering how I am going to fix my daughters teeth. I am also trying to put together a last minute party for PA (now 4 years old). I was not going to throw her one, but she found one of her gifts last night & informed us of her party plans. It is actually somewhat funny, because she has never been descriptive nor has she really voiced her wants to us (part of the Autism). Therefore, this is kind of a big deal.
I am going to do my best in hopes to make it a special day for her. However, medical issues & money weigh heavy on my mind. I going to have some faith and hope that a miracle happens for us. I know in my heart things somehow work out.
Wish me luck & thank you for reading my little rant….